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National Organisations

Contact A Family

Support, advice and information for families with disabled children.
Services include benefits checks and grant searches.

For more information:

Tel:  0808 808 3555 


Contact A Family (external website)


Information and support for families of children with brain related conditions.
Services include a team of sleep practitioners.

For more information:

Tel: 0800 328 1159


Cerebra (external website)

Caudwell Children

Support, advice and information for families with disabled children.


Caudwell Children (external website)


Working in partnership with people with a learning disability to support them to live life as they choose.

Tel: 0808 808 1111  


Mencap (external website)


Impartial and expert information, advice and support to disabled people and their families

Services include support with applying for charitable funds.

Tel: 0808 800 3333


Scope (external website)


The UK charity for brothers and sisters of disabled children and adults.

Sibs (external website)


Information and support to people with Attention Deficit Disorder, Attention Deficit Hyperactivity Disorder and related conditions.

Adders (external website)

Addiss ADHD Information Services

Information and resources about Attention Deficit Hyperactivity Disorder

Tel: 020 8952 2800


Addiss ADHD Information Service (external website)

Challenging Behaviour Foundation

Support for children and adults with severe learning disabilities and challenging behaviour.

Tel: 0845 602 7885


Challenging Behaviour Foundation (external website) 

Pathological Demand Avoidance Syndrome (PDA)

Information, resources and support for families dealing with PDA


PDA Contact Group (external website)

The National Autistic Society - What is Pathological Demand Avoidance? (external website)

National Autistic Society

Information and support for people with autism (including Asperger syndrome) and their families.

Services include: Education Rights Service and Parent To Parent

Tel: 0808 8004104


National Autistic Society (external website)

The Den - Autism education trust

The Den (external website) 

The Autism Directory

The Autism Directory (external website)

British Dyslexia Association

Information and support for dyslexic people of all ages to reach their full potential.

Tel: 0845 251 9002


British Dyslexia Association (external website)

Dyspraxia Foundation

Information and support for people with Dyspraxia

Tel: (01462) 454986  


Dyspraxia Foundation (external website)

Epilepsy Action

Information and support for people with Epilepsy and their families.

Tel: 0808 800 5050


Epilepsy Action (external website)

Young Epilepsy

Provideing families and professionals with information, education and training about epilepsy in young people.

Tel: (01342) 831342


Young Epilepsy (external website)

Diabetes UK

Provides information, advice and support to help people manage their diabetes effectively.

Tel: 0845 120 2960


Diabetes UK (external website)

Cystic Fibrosis Trust

Advice, support and information on any aspect of cystic fibrosis, including help with financial support.

Tel: 0300 373 1000


Cystic Fibrosis Trust (external website)

Anaphylaxis Campaign

Providing information and support relating to foods and other triggers, to people at risk from severe allergic reactions (anaphylaxis).

Tel: (01252) 542029


Anaphylaxis Campaign (external website)

AYME - Association Of Young People With Me

Support for children and young people (up to 26 years) who have ME/CFS and their parents. Tel: 08451 232389


AYME Association Of Young People With Me (external website)

Hypnotherapy Directory

Launched to connect individuals with qualified hypnotherapists in the UK.

Tel: 0844 803 0253


Hypnotherapy-directory (external website)

Royal National Institute of Blind People (RNIB)

Supporting people who are losing their sight, blind or partially sighted, our practical and emotional support can help you face the future with confidence.

Tel: 0303 123 9999 (Monday to Friday 8.45am - 5.30pm)


Royal National Institute of Blind People (external website)

The Royal Society for Blind Children

We support children and young people aged 0 to 25yrs who have been diagnosed with any form of visual impairment. To contact the family support worker covering Hull and East Riding


Tel: 020 7808 6170


The Royal Society for Blind Children (external website)


Information, advice and support for children and adults who are deaf blind, dual-sensory impairments.

Tel: 0845 127 0066 or 020 7520 0972


Sense (external website)

National Deaf Children Society (NDCS)

Helpline providing emotional and practical support and publications to families of children with hearing impairment.

Tel: 0808 800 8880


National Deaf Children Society (external website)

Muscular Dystrophy Campaign

Supporting families affected by muscle-wasting conditions.

Tel: 0800 652 6352


Muscular Dystrophy Campaign (external website)

Steps Charity

Information and support for anyone affected by clubfoot, hip dysplasia and other lower limb deficiencies.

Tel:  01925 750271


Steps Charity (external website)

Scoliosis Association (UK)

Advice, support and information to people with scoliosis and other spinal conditions, including kyphosis and lordosis.

Tel: 020 8964 1166


Scoliosis Association UK (external website)

The Children's Sleep Charity

Our aim is that “All children are supported to get a good night’s sleep and that the importance of sleep for children’s mental, emotional and physical well being is valued and established across England and Wales”

Tel: 07912 667676


The Children's Sleep Charity (external website)

Tired Out

A sleep support service by Family Fund aims support parents and carers of disabled children with sleep issues includes information about UK-wide support available to families in their local area and provides useful sleep tips and a wide range of research, resources and stories from families themselves.


Tired Out (external website)

The Communication Trust

Working together the trust supports everyone who works with children and young people in England to support their speech, language and communication. 

Tel: 0207 843 2526


The Communication Trust (external website)

I Can

A service for parents who are concerned about their child’s speech, language and communication, to enable them to book a phone call to talk to a speech and language therapist.

Tel: 0845 225 4073  


I Can (external website)


Support and information for children and their parents to overcome speech and language difficulties.

Tel: 0845 355 5577

Afasic (external website)

British Stammering Association

Helping those affected by stammering, providing information, membership and support for adults/parents and sign post to NHS and other specialist courses to help deal with stammering.

Tel: 020 8983 1003


British Stammering Association (external website)

Tourettes Action  

The leading support and research charity for people with Tourette Syndrome and their families. 

Tel: 0300 777 8427


Tourettes-action (external website)

SWAN UK (Syndromes Without A Name)

Run by Genetic Alliance UK offering support and information to parents of children with undiagnosed genetic conditions.

Tel: 0207 704 3141  


SWAN UK (external website) 

Down's Syndrome Association

Information and support around all aspects of living successfully with Down's syndrome.  

Tel: 020 8614 5100


Down's Syndrome Association (external website)

Little People UK

Friendship and support to people with dwarfism, their families and friends.


Little People UK (external website)

The Fragile X Society

Support and information to fragile X families.

Tel: (01371) 875100


Fragile X Society (external website)

National Organisation For Foetal Alcohol Syndrome UK

Information and support for people with foetal alcohol spectrum disorders (FASD), their families and communities.

Tel: 020 8458 5951


National Organisation For Foetal Alcohol Syndrome UK (external website) 

Max Appeal (DiGeorge Syndrome)

Information and support for parents of children diagnosed with DiGeorge Syndrome/VCFS/22q11.2 deletion.

Tel: 0300 999 2211

Max Appeal (external website)

The Anti-Bullying Alliance defines bullying as the repetitive, intentional hurting of one person or group by another person or group, where the relationship involves an imbalance of power. Bullying can be physical, verbal or psychological.  It can happen face-to-face or through cyberspace.

The Anti-bullying Alliance

Provides information, advice and resources for young people with Special Educational Needs and Disability, parent carers and professionals in relation to bullying.

Anti-bullying Alliance (external website)

Anti-bullying Alliance mental health briefing Nov 15 (pdf 1056kb, opens in new window)

Contact A Family

Support, advice and information for families with disabled children. 

Tel:  0808 808 3555 


Contact A Family (external website)

Contact a Family dealing with bullying booklet (pdf 728kb, opens in new window)


Top tips for young people, staying in control on social networking areas.

Safety Net (word 82kb, opens in new window)

Internet Safety tips for adults (word 477kb, opens in new window)

NSPCC Childline resource

Bouce back from bullying (external website)

For more organisations offering support and information, please also visit the FISH Family Service Directory

FISH Family Service Directory (external Council website).


Not in Our Community 

Offers support, advice and information about the issue of Child Sexual Exploitation to ensure that more vulnerable young people and their families are more informed and less of a target for perpetrators.

Not in Our Community (external website)

Child Exploitation & Online Protection (CEOP)

Child Exploitation & Online Protection (external website)

For more organisations offering support and information, please also visit the FISH Family Service Directory

FISH Family Service Directory (external Council website).

A Child Of Mine

A wealth of information guidance and support on all aspects bereavement for a child (or anyone affected by the death of a child)

Tel: 01785 283 434

A Child of Mine (external website)

Winston's Wish

A leading childhood bereavement charity in the UK and offer support & guidance to bereaved children, families and professionals.

Freephone Helpline tel: 08088 020 021

Winston's Wish (external website) 

Page last updated: Tuesday, 09 January 2018